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#MEcfs

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ahimsa<p>"For Some Disabled Protestors, 'Hands Off' Went Virtual"</p><p><a href="https://www.motherjones.com/politics/2025/04/hands-off-virtual-zooms-disability-covid/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">motherjones.com/politics/2025/</span><span class="invisible">04/hands-off-virtual-zooms-disability-covid/</span></a></p><p>“We know we have to teach everyone how to include us"</p><p><a href="https://disabled.social/tags/USPol" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>USPol</span></a> <a href="https://disabled.social/tags/HandsOff" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>HandsOff</span></a> <a href="https://disabled.social/tags/Disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Disability</span></a> <a href="https://disabled.social/tags/Accessibility" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Accessibility</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicIllness</span></a></p>
Anna<p>In case it was missed in the post above, this is my updated article:</p><p>👉 <a href="https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thecanary.co/global/world-anal</span><span class="invisible">ysis/2025/04/01/anna-severe-me-cfs/</span></a></p><p>My doctor predicts I will die if I don’t leave soon. </p><p>I need a solid, safe, home I can go to and recover to at least a stable baseline. It’s not full recovery, but it’s better than a slow death.</p><p>Help please 🙏 </p><p><a href="https://aus.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://aus.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> <a href="https://aus.social/tags/Hypothyroidism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Hypothyroidism</span></a> <a href="https://aus.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicIllness</span></a> <a href="https://aus.social/tags/Neisvoid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Neisvoid</span></a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Abuse</span></a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Housing</span></a> <a href="https://aus.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Dysautonomia</span></a> <a href="https://aus.social/tags/SocialWork" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SocialWork</span></a> <a href="https://aus.social/tags/MedMastodon" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MedMastodon</span></a> <a href="https://aus.social/tags/PWLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PWLC</span></a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAid</span></a> <br><a href="https://aus.social/tags/HumanRights" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>HumanRights</span></a> <a href="https://aus.social/tags/Press" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Press</span></a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Housing</span></a> <a href="https://aus.social/tags/Journalism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Journalism</span></a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> <a href="https://aus.social/tags/SevereME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SevereME</span></a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Abuse</span></a> <a href="https://aus.social/tags/Neglect" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Neglect</span></a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAid</span></a> <a href="https://aus.social/tags/Narcissist" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Narcissist</span></a> <a href="https://aus.social/tags/Psychopath" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Psychopath</span></a> <a href="https://aus.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MCAS</span></a> <a href="https://aus.social/tags/MCAD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MCAD</span></a> <a href="https://aus.social/tags/Endometriosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Endometriosis</span></a> <a href="https://aus.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicPain</span></a> <a href="https://aus.social/tags/CostOfLivingCrisis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CostOfLivingCrisis</span></a> <a href="https://aus.social/tags/Melbourne" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Melbourne</span></a> <a href="https://aus.social/tags/Australia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Australia</span></a> <a href="https://aus.social/tags/DomesticAbuse" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DomesticAbuse</span></a> <a href="https://aus.social/tags/DV" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DV</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/neisvoid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>neisvoid</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>disabilityjustice</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>disability</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/socialwork" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>socialwork</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>dysautonomia</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mutualaid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mutualaid</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicpain" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>chronicpain</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mcas" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mcas</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/australia" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>australia</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/melbourne" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>melbourne</span></a></span></p>
ahimsa<p>If you can't join any of the other events please try to show up on social media on May 12.</p><p><a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEAction</span></a> suggestion:</p><p>"Get creative - create SOS art with messages for our elected officials"</p><p>Millions Missing toolkit:</p><p><a href="https://docs.google.com/document/d/1jeBHwmTcxFkuEflbm0UeHGRAMvNuTKwgCP43G7eGxzQ/edit?tab=t.0" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">docs.google.com/document/d/1je</span><span class="invisible">BHwmTcxFkuEflbm0UeHGRAMvNuTKwgCP43G7eGxzQ/edit?tab=t.0</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> </p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a><br><a href="https://disabled.social/tags/MEAwareness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEAwareness</span></a> <a href="https://disabled.social/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://disabled.social/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MillionsMissing</span></a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a></p>
ahimsa<p>News from <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEAction</span></a> - planning for <a href="https://disabled.social/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MillionsMissing</span></a> 2025 (May 12)</p><p>"If you are interested in organizing a protest, gathering in a park as a community or making art, please join one of our protest organizing meetings on Thursday, April 10"</p><p>Meeting 1: Thursday, 4/10, 12pm PT/3pm ET<br><a href="https://us06web.zoom.us/meeting/register/EHwZzzubSpqIi31vM1VRNQ#/registration" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">us06web.zoom.us/meeting/regist</span><span class="invisible">er/EHwZzzubSpqIi31vM1VRNQ#/registration</span></a></p><p>Meeting 2: Thursday, 4/10, 3pm PT/6pm ET<br><a href="https://us06web.zoom.us/meeting/register/2hriH4c1RU6VbSGbEBrjHA#/registration" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">us06web.zoom.us/meeting/regist</span><span class="invisible">er/2hriH4c1RU6VbSGbEBrjHA#/registration</span></a></p><p>Details:<br><a href="https://www.meaction.net/2025/04/02/millionsmissing-2025-sending-out-an-sos/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meaction.net/2025/04/02/millio</span><span class="invisible">nsmissing-2025-sending-out-an-sos/</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span> </p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/MEAwareness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEAwareness</span></a> <a href="https://disabled.social/tags/May12" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>May12</span></a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a></p>
Anna<p>PLEASE HELP ME ESCAPE!</p><p>Please <a href="https://aus.social/tags/boost" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>boost</span></a> and share to other platforms.🙏I don’t have energy left (see below).</p><p>Seems I’m famous (and real!) and desperate enough to go to the media for help. Yes, the trapped woman in the articles below is me.</p><p>👉Last year:<br><a href="https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thecanary.co/global/world-anal</span><span class="invisible">ysis/2024/05/03/me-cfs-anna-australia/</span></a></p><p>Now things are worse, I’m much sicker, being neglected and will die without a safe stable <a href="https://aus.social/tags/home" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>home</span></a>. Doctor’s words.</p><p>If not mentioned in the article, my father is a diagnosed <a href="https://aus.social/tags/narcissist" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>narcissist</span></a> with <a href="https://aus.social/tags/psychopathic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>psychopathic</span></a> &amp; <a href="https://aus.social/tags/antisocial" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>antisocial</span></a> tendencies by a <a href="https://aus.social/tags/psychiatrist" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>psychiatrist</span></a>. He urged me get away from my father asap because he is not a ‘safe person’ &amp; neither are the other family members who lured me back through the promise of help.They didn’t help they made me progressively worse to the point of almost incapacitation at stage of <a href="https://aus.social/tags/illness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>illness</span></a>.</p><p>👉A year later:<br><a href="https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thecanary.co/global/world-anal</span><span class="invisible">ysis/2025/04/01/anna-severe-me-cfs/</span></a></p><p>I’ve tried every level of government, every service and they simply won’t help. </p><p>Are able help? Please ask people in real life if they have somewhere for me to go. Could they take me in (I can pay small rent)? A lot people have ‘big house, not enough money’ problem. I can help!</p><p>Is anybody an <a href="https://aus.social/tags/advocate" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>advocate</span></a>? I desperately need help. </p><p>I would be incredibly grateful for any help beyond words.🙏</p><p>Please read articles for full information.</p><p>Thank you for reading.</p><p><a href="https://aus.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://aus.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> <a href="https://aus.social/tags/Hypothyroidism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Hypothyroidism</span></a> <a href="https://aus.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicIllness</span></a> <a href="https://aus.social/tags/Neisvoid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Neisvoid</span></a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Abuse</span></a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Housing</span></a> <a href="https://aus.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Dysautonomia</span></a> <a href="https://aus.social/tags/SocialWork" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SocialWork</span></a> <a href="https://aus.social/tags/MedMastodon" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MedMastodon</span></a> <a href="https://aus.social/tags/PWLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PWLC</span></a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAid</span></a> <br><a href="https://aus.social/tags/HumanRights" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>HumanRights</span></a> <a href="https://aus.social/tags/Press" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Press</span></a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Housing</span></a> <a href="https://aus.social/tags/Journalism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Journalism</span></a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> <a href="https://aus.social/tags/SevereME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SevereME</span></a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Abuse</span></a> <a href="https://aus.social/tags/Neglect" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Neglect</span></a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MutualAid</span></a> <a href="https://aus.social/tags/Narcissist" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Narcissist</span></a> <a href="https://aus.social/tags/Psychopath" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Psychopath</span></a></p>
LN<p>Liebe Bubble,<br>Ich bin auf der Suche nach einem guten Tracker für Medikamente auf Android. Meine Frau wurde mit <a href="https://swiss.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mecfs</span></a> diagnostiziert. Nicht, dass dies selbst schon schwierig genug wäre, ist das korrekte Einnehmen der Medikamente für sie gerade auch nicht so einfach. Die Apps, welche ich bis jetzt gefunden habe, hatten massenhaft Werbetracker und co drin... Kennt da jemensch etwas?<br>Danke für einen Boost ❤️<br><a href="https://swiss.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a> <a href="https://swiss.social/tags/medikation" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>medikation</span></a></p>
Mx. Luna Corbdenmore whinging
Broadwaybabyto<p>“We’ve been conditioned by society that pain is weakness. That being sick is something you can overcome by simply trying harder.”</p><p>You can’t “try harder” your way out of disability. It’s not a weakness or a moral failing.</p><p>It is one of the only minority groups you can join at any time. </p><p>Ableism forces us to hide our suffering. To smile through the pain and deliver a convincing “I’m fine”</p><p>My latest looks at what would happen if we stopped hiding, as well as ways you can support the disabled person in your life. </p><p><a href="https://www.disabledginger.com/p/why-are-chronically-ill-people-forced" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/why-are-c</span><span class="invisible">hronically-ill-people-forced</span></a></p><p><a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/pain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pain</span></a> <a href="https://zeroes.ca/tags/fatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fatigue</span></a> <a href="https://zeroes.ca/tags/disabiltiyrights" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disabiltiyrights</span></a> <a href="https://zeroes.ca/tags/disabilityjustice" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disabilityjustice</span></a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>spoonie</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mecfs</span></a></p>
Broadwaybabyto<p>When I started The Disabled Ginger I sent it to my friends and family … as most of us do. </p><p>I was proud that I was finally standing up for disability rights. That I was taking my pain and putting it on the page in an effort to help others. That I had found something that lit a spark inside me. </p><p>Unfortunately, many of my friends didn’t feel the same way. </p><p>My disabilities are invisible, and I had become very good at hiding them. Apparently that’s what people expected of me, as they didn’t like this “new” version of Kelly. </p><p>Almost none of my friends subscribed. What’s worse, many stopped talking to me. Or would only reply in brief texts. </p><p>It’s almost been a year since I launched, and my circle is noticeably smaller. Many people I thought I was close with haven’t reached out for nearly 6 months. </p><p>When you find your purpose and your passion, it’s an incredible feeling. Hopefully people support you. </p><p>Not everyone will. And that’s ok. </p><p>It’s painful seeing so many relationships fade away. It hurts knowing they don’t see the value in me now that I’m “officially” disabled. </p><p>As painful as it is, it’s also a perfect example of why I became an advocate. Ableism is a huge problem. Being disabled can be incredibly lonely. I wanted to give a voice to those who haven’t yet found theirs. </p><p>In the process I’ve met incredible people from all over the world who inspire me to keep going. Who give me a reason to write every day. Who remind me of the compassion, love and goodness that’s still out there. </p><p>Thank you to each and every one of you. I couldn’t do this alone. </p><p>My latest looks at the reasons we hide, and what would happen if we all decided to stop hiding and show the world the realities of chronic illness: </p><p><a href="https://www.disabledginger.com/p/why-are-chronically-ill-people-forced" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/why-are-c</span><span class="invisible">hronically-ill-people-forced</span></a></p><p><a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mecfs</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/disabilityrights" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disabilityrights</span></a> <a href="https://zeroes.ca/tags/eugenics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>eugenics</span></a></p>
Hilda Bastian<p>Cochrane has amended the editorial note on the <a href="https://mastodon.online/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a> exercise review for the second time since issuing it. Some improvement, which is good to see. But they still haven't gone far enough</p><p><a href="https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub9/full" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">cochranelibrary.com/cdsr/doi/1</span><span class="invisible">0.1002/14651858.CD003200.pub9/full</span></a></p><p>Our comment online <a href="https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub9/detailed-comment/en?messageId=451525047" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">cochranelibrary.com/cdsr/doi/1</span><span class="invisible">0.1002/14651858.CD003200.pub9/detailed-comment/en?messageId=451525047</span></a></p><p><a href="https://mastodon.online/tags/CochraneStuff" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CochraneStuff</span></a></p>
ImmedicableME<p>My significant other was diagnosed with breast cancer today. </p><p>It’s small. Hopefully the treatment will be easy and successful. </p><p>She’s my caregiver and the caregiver to her 88 year old mom. How is this possibly going to work? I feel so scared and helpless. If I didn’t have <a href="https://mastodon.online/tags/MECFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MECFS</span></a>, I could do all the things to help her. Right now I’m in a severe crash and can barely take care of myself. I’m so overwhelmed. </p><p>I have to believe she’s going to be ok. I have to.</p>
Robot DiverFood, MECFS, Cooking Tips