Jonathan Kamens<p>I signed up years ago for the <a href="https://federate.social/tags/NIH" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NIH</span></a> <a href="https://federate.social/tags/AllOfUs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AllOfUs</span></a> research program so the NIH has extensive data about me, including genetic data.<br>I trusted NIH then to keep my data secure and private, but I am obviously reconsidering that and thinking about withdrawing from the program.<br>I've asked All Of Us what assurances they can give that my data will remain safe, but I am skeptical that they'll have a persuasive answer.<br>Anybody else in this boat?<br><a href="https://federate.social/tags/privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>privacy</span></a> <a href="https://federate.social/tags/medicalResearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>medicalResearch</span></a></p>