I signed up years ago for the #NIH #AllOfUs research program so the NIH has extensive data about me, including genetic data.
I trusted NIH then to keep my data secure and private, but I am obviously reconsidering that and thinking about withdrawing from the program.
I've asked All Of Us what assurances they can give that my data will remain safe, but I am skeptical that they'll have a persuasive answer.
Anybody else in this boat?
#privacy #medicalResearch